INTERNAF is an international email based network. This network allows members access to medical and research information, much needed support, question and answer exchanges and daily living tips, pertaining to ataxia from all over the world. Those diagnosed, their family, friends or anyone with an interest in any of the numerous ataxias, are encouraged to join us. Internaf is run by volunteers who all have some form of ataxia themselves. We all aim to make this a friendly and informative place. There are currently subscribers from more than 40 countries worldwide.

Subscriptions to INTERNAF are free and the list is unmoderated (new members are moderated at first to protect the list from spammers).

To subscribe to INTERNAF, send an email to [email protected] or to have full access to all of the GroupIO options on the website subscribe via https://groups.io/g/INTERNAF

***ONLY SUBSCRIBED USERS CAN SEND E-MAIL TO THE LIST***

We also have a website containing alot of info at http://internaf.org/

TELL US ABOUT YOURSELF:

Please send a message to the list (if you wish) introducing yourself and indicating whether you are a patient, friend, relative or caregiver and the type of Ataxia diagnosed.

HOW TO SEND A MESSAGE TO THE LIST:

The introductory message as well as all other "public" messages should be sent to the following e-mail address: [email protected]

Your message will be automatically sent to all subscribers. Conversely, you will receive all messages sent to the above address.

REPLYING PUBLICLY TO THE LIST:

When deciding whether to reply publicly or privately, you should ask yourself if your response may benefit any other members. If the answer is yes, then you should reply publicly

To do this, use the "REPLY ALL" feature of your mail software. Before sending however, please check in the "header" of your mail, that the message is addressed to: [email protected]

REPLYING PRIVATELY TO INDIVIDUAL LIST MEMBERS:

If you want to reply privately to the sender of a message, use the "REPLY" feature of your mail software. Before sending however, please check in the "header" of your mail, that the message is addressed to the sender and not to the list.

WHICH LIST TO JOIN

Because of the success of the Internaf list and the volume of mail generated, some members may prefer to switch to the digest version - A single e-mail containing all recent posts. The frequency of the digest version is one email per day.

You may choose to subscribe to either list internaf and switch to the digest version, if you are unsure which list to join, read this first.

INTERNAF DIGEST VERSION

The INTERNAF DIGEST version option is for those who don't wish to receive 20 or more separate emails per day from the regular INTERNAF subscription option, but instead receive one large email every day. The DIGEST is much easier to manage as it is simple to scroll through and skim for any items of interest.

To switch to the DIGEST version, first subscribe to internaf then send an email to [email protected] and to switch back send an email to [email protected].

TO ACCESS VIA THE WEB (ALL POSTS ARE ARCHIVED AND SEARCHABLE)

Go to the Internaf Home Page on Group.IO: https://groups.io/g/INTERNAF
The first time on Group.IO you'll have to subscribe (to Group.IO, not Internaf), then just click on and all our posts are there.
When you think or know a certain subject has been talked about before on the list, you can search our messages archives. Just click on and type in a word that's in the subject or in the message body, the authors name or email, in the Search box and then click on Search button:

If you are going to be away from your computer for any length of time, for vacations etc. You are advised to changes your delivery setting to no message delivery before you leave, this way you're still subscribed and you can read messages via the web page, here's how:

Click here and send: [email protected]

Then, on your return just restore your settings, here's how:

Click here and send: [email protected]

changes your delivery setting back to Individual Emails for the group.

OR

Click here and send: [email protected]

changes your delivery setting back to Daily Digest for the group.

UNSUBSCRIBING FROM A LIST:

To unsubscribe from the list at any time:

Click here and send: [email protected]

FOR QUESTIONS OR HELP:

Click here and send: [email protected]

dispatches an email that contains the basic information of the group.