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Mainland Europe Europe in generalThe international name for this disease is Hereditary Spastic Paraplegia. It is part of the big family of spinocerebellar degenerative hereditary diseases in which the pathologies are somewhat intermediate and hard to differentiate especially in what is called the "complicated" form. However, the "pure" form of S-L is increasingly better known. Many studies are currently undertaken to better understand the main one, SPG4. France The disease of Strümpell-Lorrain Strümpell-Lorrain Association This spinal, and sometimes cerebellar, degeneration is clinically a part of cerebellar ataxias. That is why in France, we created a federation with the goal to unite all the European organizations (SCD EURO). Concomitantly, a medical network on spinocerebellar degeneration is being created. SCD EURO Philippe Grammont For Friedreich's Ataxia and another one CSC : French association for cerebellar diseases. Belgium http://www.ataxie.be/Germany
Greece Hellenic Friedreich’s Ataxia Association, Italia PortugalScandinaviahttp://dk.groups.yahoo.com/group/Ataxi/ Spain Federación de Ataxias de España (FEDAES) SwedenSwitzerland |
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